Women's health data ambassadors
A formally constituted pan-Nordic ambassador programme of 10–15 positions over the five-year EHDS window.
The bridge between data standards (R-D-1) and clinical data capture (C-D-1). EHDS implementing acts finalise 2026–2028, secondary use from March 2029; if women's health variables are not advocated for during this window, data dictionaries will lock in gaps for a generation.
Transformation
From
Women's health variables enter European data architectures only as occasional advocacy from individual researchers; the EHDS implementing acts window 2026–2027 risks closing without coordinated Nordic input
To
A formally constituted pan-Nordic ambassador programme (10–15 positions over the five-year EHDS window) on EHDS, HL7 Europe, and SNOMED CT data standards — building a recognisable women's-health talent layer embedded in standards bodies, connecting R-D-1 to Brussels through named people rather than memos
Description
A formally constituted pan-Nordic ambassador programme on EHDS, HL7 Europe, and SNOMED CT data standards, with a women’s health focus, would build a recognisable talent layer of people sitting at the intersection of biomedical informatics and women’s health domain knowledge, embedded in the standards bodies where data dictionaries and interoperability requirements are decided. Without that talent layer, women’s health variables enter European data architectures only as occasional advocacy from individual researchers, and the EHDS implementing acts window of 2026 to 2027 closes without coordinated Nordic input.
The nucleus of expertise already exists, in VALO2, NeIC, and the myHealth@ myHands consortium, with HL7 Europe and CDISC ambassadors as international structural references. A coordinated programme on the order of ten to fifteen ambassador positions, deployed over the five-year EHDS implementation window, would translate scattered individual expertise into a recognisable pan-Nordic talent layer that European standards bodies engage with directly, and connect the Nordic women’s health data dictionary (R-D-1) to Brussels through named people rather than memos. Nordic Innovation, NordForsk, and the five national digital health authorities are the natural conveners of the call.
Evidence anchors
At a glance
- Natural lead
- Nordic Innovation, NordForsk, and five national digital health authorities
- Indicative investment
- €0.5–1M/year
Entry points
- NordicNordForsk coordinates placement; universities provide ambassadors
- NationalNational data offices support ambassador advocacy
- RegionalClinical researchers provide use cases for standards advocacy
Indicators
Output
- Ambassadors placed in 3+ major initiatives
- 5+ initiatives include WH requirements
- 15+ countries adopt Nordic-originated standards
Handoff
- R-D-1 Data Dictionary submitted to EHDS process
- EHDS secondary use includes WH variables
- Global data standards reflect WH requirements
Outcome
- Women's health visible in data governance
- 1,500+ users of WH data standards
Building on
Nordic foundations
European frameworks
International inspirations
Connected needs
Cite this need
Cite this need
Persson, J. (2026). I-P-1 Women's health data ambassadors. In The Nordic Implementation Playbook for Women's Health 2040. CIFS. https://womenshealth2040.org/playbook#i-p-1