Women's health patient-reported outcome infrastructure

Patient-reported outcome infrastructure directed specifically at women’s health conditions is the data layer on which several other named needs depend, including value-based reimbursement in C-M-1, care pathway standards in C-Po-2, registry integration and sex-disaggregation in C-D-2, and the Nordic women’s health data dictionary in R-D-1.

The infrastructure exists at national scale in Sweden, Norway, and Denmark, but it has not been applied to women’s health conditions in any of them beyond pregnancy and surgical gynaecology. Three of the eight named needs in this chapter, and R-D-1 in the Research chapter, depend on this infrastructure being instrumented for women’s health. A coordinated Nordic deployment of the Women-Centred Care quality-of-life instrument stack would close the gap. The stack includes EQ-5D-5L for crosspathway comparability, MENQOL for menopause, Brief Pain Inventory for pain, and HeartQoL for cardiovascular conditions. Building it into the existing national PROM platforms, Nationell formulärsamling, AmbuFlex, the Norwegian quality registers, and Terveyskylä, with the Socialstyrelsen menopause framework finalised in April 2026 as the sequencing window, and the UK 2026 Renewed Women’s Health Strategy patient-reported outcome commitment as international reference, would let value-based reimbursement, pathway evaluation, and EHDS data dictionary advocacy all become possible at once. SKR and Inera in Sweden, Region Midtjylland in Denmark, the Norwegian national quality-register system, the Terveyskylä consortium in Finland, and Landlæknir in Iceland, with NordForsk and the NMC as coordination partners, are positioned to deploy it.